AD| Affiliate Link *Disclaimer: I am not a medical professional and I am sharing my own personal experiences.* 1. If you can do it laying down, do it laying down! Sitting upright can be challenging when living with PoTS. So use your upright time wisely by doing everything you can laying down. Split your upright time between things you have to do like chores and … Continue reading 5 Tips for Living with PoTS
Hi Katie, Firstly, I want to say that I am really sorry about your accident, what you are going through and the strain that has also put on your mental health. I personally don’t think it matters how it all came about because the pain and trauma you have felt/ will feel are your experiences. I read your interview with OK! Magazine as many within … Continue reading An Open Letter to Katie Price
I’ve been asked by a few people lately why I add an image description to the bottom of my Instagram posts. So I thought I would answer that question today. I didn’t fully understand Alt Text/Image Descriptions (ID) until about a year ago and it wasn’t until more recently that I knew how they worked or how to add them to my social media/blog. What … Continue reading Why I Add Alt Text/Image Descriptions to My Posts
To , I have to ask, your email is a joke, right? I contacted the concerns team and health board to discuss how poorly I was treated by one of your doctors. His views on me and lack of understanding for my other health conditions has meant that I have no support in managing this condition. I live with … Continue reading The Letter I Wish I Could Send The Hospital Health Board
Today I went to a local high-street to collect an order I had placed. Once I came out of the shop I stopped to put my bags on the back of my chair. Whilst I was doing this a man probably in his fifties walked up to me and asked ‘why are you in a wheelchair’. I am 100% aware that I don’t owe anyone … Continue reading My Disability is None of Your Damn Business
*CW: Brief mention of missed periods. Disclaimer: I am not a medical professional. I am discussing my own experience.* Here is the story of when a Doctor told me I had a benign Brain Tumour. Spoiler, I (probably) don’t actually have a brain tumour. What is a benign brain tumour A benign brain tumour is a growth on the brain. The definition of a benign … Continue reading They Told Me I had a (benign) Brain Tumour
May is EDS/HSD Awareness Month. Thank you if you are reading this, I hugely appreciate your support in raising awareness for these conditions, please help us by sharing this post on your social media platforms. *Disclaimer, I am not a medical professional. I also speak primarily about hEDS/HSD as I have a diagnosis of Hypermobility Syndrome and have more experience discussing this* What is EDS/HSD? The Ehlers-Danlos … Continue reading What is EDS/HSD?
*Disclaimer* I am not a health care professional or fitness instructor. This post discusses my experiences and how I personally feel. This should not be used as treatment or health advice. First up let me just say I am not naïve enough to genuinely think Pilates would cure me. I didn’t start Pilates to be cured or as an experiment however, during the time I … Continue reading I Tried Pilates & It Didn’t Cure Me
Where it All Began The World in my Words began on the 2nd of September 2017. I had something to say and I didn’t have the patience to wait. I created a new look for The World in my Words in an hour which had existed for a few years unused and I published my first piece. Since then The World in my Words has … Continue reading The World in my Words – A New Look
Yesterday, 25th October 2019 was the first annual #PotsAwarenessDay! PoTS, Postural Orthostatic Tachycardia Syndrome also comes under the term Dysautonomia. PoTS is an abnormality of the functioning of the autonomic (involuntary) nervous system. The autonomic nervous system is in charge of all our bodily functions that we don’t have to think about including: heart rate regulation, blood pressure regulation, digestion, bladder control, sweating and stress … Continue reading PoTS Awareness Day 2019 – What is PoTS?