The Letter I Wish I Could Send The Hospital Health Board

To              , I have to ask, your email is a joke, right? I contacted the concerns team and health board to discuss how poorly I was treated by one of your doctors. His views on me and lack of understanding for my other health conditions has meant that I have no support in managing this condition. I live with … Continue reading The Letter I Wish I Could Send The Hospital Health Board

My Disability is None of Your Damn Business

Today I went to a local high-street to collect an order I had placed. Once I came out of the shop I stopped to put my bags on the back of my chair. Whilst I was doing this a man probably in his fifties walked up to me and asked ‘why are you in a wheelchair’. I am 100% aware that I don’t owe anyone … Continue reading My Disability is None of Your Damn Business

They Told Me I had a (benign) Brain Tumour

*CW: Brief mention of missed periods. Disclaimer: I am not a medical professional. I am discussing my own experience.* Here is the story of when a Doctor told me I had a benign Brain Tumour. Spoiler, I (probably) don’t actually have a brain tumour. What is a benign brain tumour A benign brain tumour is a growth on the brain. The definition of a benign … Continue reading They Told Me I had a (benign) Brain Tumour

What is EDS/HSD?

May is EDS/HSD Awareness Month. Thank you if you are reading this, I hugely appreciate your support in raising awareness for these conditions, please help us by sharing this post on your social media platforms.  *Disclaimer, I am not a medical professional. I also speak primarily about hEDS/HSD as I have a diagnosis of Hypermobility Syndrome and have more experience discussing this* What is EDS/HSD? The Ehlers-Danlos … Continue reading What is EDS/HSD?

The World in my Words – A New Look

Where it All Began The World in my Words began on the 2nd of September 2017. I had something to say and I didn’t have the patience to wait. I created a new look for The World in my Words in an hour which had existed for a few years unused and I published my first piece. Since then The World in my Words has … Continue reading The World in my Words – A New Look

PoTS Awareness Day 2019 – What is PoTS?

Yesterday, 25th October 2019 was the first annual #PotsAwarenessDay! PoTS, Postural Orthostatic Tachycardia Syndrome also comes under the term Dysautonomia. PoTS is an abnormality of the functioning of the autonomic (involuntary) nervous system. The autonomic nervous system is in charge of all our bodily functions that we don’t have to think about including: heart rate regulation, blood pressure regulation, digestion, bladder control, sweating and stress … Continue reading PoTS Awareness Day 2019 – What is PoTS?