The Letter I Wish I Could Send The Hospital Health Board

To              , I have to ask, your email is a joke, right? I contacted the concerns team and health board to discuss how poorly I was treated by one of your doctors. His views on me and lack of understanding for my other health conditions has meant that I have no support in managing this condition. I live with … Continue reading The Letter I Wish I Could Send The Hospital Health Board

My Disability is None of Your Damn Business

Today I went to a local high-street to collect an order I had placed. Once I came out of the shop I stopped to put my bags on the back of my chair. Whilst I was doing this a man probably in his fifties walked up to me and asked ‘why are you in a wheelchair’. I am 100% aware that I don’t owe anyone … Continue reading My Disability is None of Your Damn Business

The World in my Words – A New Look

Where it All Began The World in my Words began on the 2nd of September 2017. I had something to say and I didn’t have the patience to wait. I created a new look for The World in my Words in an hour which had existed for a few years unused and I published my first piece. Since then The World in my Words has … Continue reading The World in my Words – A New Look

Does Helping Me Make You Feel Good?

As someone with a disability,  previous crutches user, walking stick user and now a wheelchair user I can tell you that the offers of help I get or have had when out and about are a little like marmite. People either really go for it or they stay well clear. Quite often people will offer to help me with a door, reaching for my bag … Continue reading Does Helping Me Make You Feel Good?

What does Oesophageal Dysmotility Consist of For Me & Do I have a Plan?

Simply, no we don’t really. I know this post is a little over due but I thought I still may as well write it as I’d like to try to keep you all as up to date as I can through my medical life. Back in May I had my much awaited first Gastro Appointment in Cardiff with my new Consultant. Before I go into … Continue reading What does Oesophageal Dysmotility Consist of For Me & Do I have a Plan?

It Only Takes One Person (+ Subluxing My Shoulder)

UGGHH TO HYPERMOBILITY! Last week I had a lot of odd feelings and pains in my arm/shoulder. It felt really heavy, tingly, loose etc I’m pretty sure it has been slipping and been close to subluxing or has been subluxing. When I woke up on Sunday morning I felt as though I couldn’t breathe as my pain was so intense. I assume I subluxed my … Continue reading It Only Takes One Person (+ Subluxing My Shoulder)

Country Side Mobility

I thought it was time I shared my experience with Country Side Mobility. Country Side Mobility is a not-for-profit mobility equipment hire scheme. They work to improve access to the country side for people with limited mobility with Trampers (a type of mobility scooter) and Wheelchairs with off road wheels. The scheme runs within the South West Region, for those living within the South West … Continue reading Country Side Mobility

My Goal for Independence.

Due to the support I have received I will assume that my regular viewers are all aware that I am currently fundraising for a Power Assist Add On for my wheelchair. The Alber E-Fix 35 (You can find out more about this piece of equipment here). I thought I should take some time to explain why raising the money for this amazing piece of equipment … Continue reading My Goal for Independence.

Spoonie Slow Cooking – Honey Garlic Chicken

Since my health deteriorated at the start of 2017 I have struggled with the cooking. In fact until last month other than some soup I hadn’t cooked a proper meal for myself or James since… well at least 6 months ago. It’s been so long I can’t remember! I enjoy cooking I always have, I enjoyed food technology at school but even 5 years ago … Continue reading Spoonie Slow Cooking – Honey Garlic Chicken