What is EDS/HSD?

May is EDS/HSD Awareness Month. Thank you if you are reading this, I hugely appreciate your support in raising awareness for these conditions, please help us by sharing this post on your social media platforms.  *Disclaimer, I am not a medical professional. I also speak primarily about hEDS/HSD as I have a diagnosis of Hypermobility Syndrome and have more experience discussing this* What is EDS/HSD? The Ehlers-Danlos … Continue reading What is EDS/HSD?

I have PoTS – Cardiology Update

The big cardiology appointment. I was expecting to write one of two posts. One would be me celebrating a diagnosis, we finally had a name for the symptoms and the months of feeling so poorly. The second would be me yelling PLOT TWIST as something completely new and random popped up. What I am going to write is neither. I have a diagnosis, in fact … Continue reading I have PoTS – Cardiology Update

What does Oesophageal Dysmotility Consist of For Me & Do I have a Plan?

Simply, no we don’t really. I know this post is a little over due but I thought I still may as well write it as I’d like to try to keep you all as up to date as I can through my medical life. Back in May I had my much awaited first Gastro Appointment in Cardiff with my new Consultant. Before I go into … Continue reading What does Oesophageal Dysmotility Consist of For Me & Do I have a Plan?

My New Pain Management Plan

Back in June I saw my new Pain Management Consultant(s). I have to say I was extremely worried before this appointment as I didn’t really know what to ask for anymore especially after a very unsuccessful appointment in my previous hospital. I went in with no expectations and I left with more than I was expecting. I will try my best to write out my … Continue reading My New Pain Management Plan